Friday, October 2, 2015

October 2015 prayer request

Katie is in kindergarten!! I still can't believe it! She is doing amazing! She has an aide that helps her as she writes and school in general. She still needs prayers because when she writes/copies it requires so much visual focus and fine motor precision that she tries to shut down and quit.  It has to be exhausting to focus so hard and still have it be so difficult with these as her two weakest areas. But her teacher and aide are challenging her and so far she is able to fight through. Pray it becomes easier and that she continues to comply! 
Also please continue to pray for her weight. I am continually concerned with her weight. We walk home from school everyday (just over 1/2 mile) and she is in PE 3 days a week and swim lessons. She plays hard and continually eats less than normal children. She is eating more fruits and vegetables. But she continues to gain significant weight. It hurts that I can't fix it. But Katie knows no difference. I can barely afford to keep buying her bigger sizes.  But I thank God she is happy and healthy overall! Please continue to pray that she stays seizure free. Her weight gain slowed when we lowered her seizure meds, but I do seem to think the big trigger is her brain damage. Please pray for her body and brain to slow its weight gain and that puberty waits for several more years as prepubescent puberty is common with brain injuries as well. 
But continue to give thanks for her cognitive ability and her overall amazingness!! I never thought I'd be doing regular kindergarten homework with her. I wouldn't thought she'd master letters and sounds by beginning of kindergarten. She could barely write her name this time last year. 
Katie is God's miracle! Her therapists, teachers, aides and family and friends have helped her in millions of ways, but God gets the glory! 
Thank you Lord!! 

Friday, April 3, 2015

Newest prayer request

So, this is one of the harder prayer request to share. I guess because most of Katie's ailments and struggles I simply do my best and I could never be considered at fault. Yet when it comes to her weight I feel I could carry responsibility and it seems more personal. But I have improved her diet and watched her activity level. I am confident in my efforts that her weight gain is not because of me and outside circumstances. She eats significantly less calories than her age and activity level require. Something within her body is off and we've started a string of blood tests to start investigating.  We are not ruling out her seizure meds, but since she has been on the meds for two years and the weigh gain only started last April we are looking at hormones and internal stuff and ruling everything out. All basic blood tests are within a healthy range. She is doing great overall! But her weigh gain is rising dangerously quick and I won't wait it out any longer. I can tell her stamina is dropping as her weigh rises. Her pediatrician is amazing and calls me to discuss her and calls other doctors for advice. After her blood tests results come in next week we will continue to dig deeper. 
Thanks for praying!!